تبیین موانع ساختاری هندلینگ مادری کودکان دارای فلج مغزی در منزل

نوع مقاله : مقاله پژوهشی

نویسندگان

1 استادیار گروه کاردرمانی، دانشکده توانبخشی، دانشگاه علوم پزشکی، اراک، ایران

2 دانشیار مرکز تحقیقات توانبخشی اعصاب اطفال و گروه آموزشی کاردرمانی، دانشگاه علوم بهزیستی وتوانبخشی، تهران، ایران

3 فلوشیپ در گروه آموزشی پرستاری، دانشگاه آلستر، جردن استون، ایرلند شمالی

4 دانشیار گروه آموزشی پرستاری، دانشگاه علوم بهزیستی وتوانبخشی، تهران، ایران

10.22037/jrm.2016.1100190

چکیده

مقدمه و اهداف
هندلینگ مادری، نقش مهمی در زندگی روزمره کودکان فلج مغزی و مادرانشان ایفا می­کند، به­نحوی که بیشترین میزان هندلینگ کودک فلج مغزی توسط مادر و در منزل انجام می­شود. لذا هدف از مطالعه­ی پیش رو، تبیین موانع ساختاری هندلینگ مادری کودکان دارای فلج مغزی در منزل بود.
مواد و روش­ها
 تحقیق حاضر کیفی به شیوه­ی نظریه بسترزاد در شهر تهران انجام گرفت. روش نمونه گیری در ابتدا هدفمند بود و در ادامه از نمونه­گیری نظری استفاده شد. انتخاب مشارکت کنندگان تا اشباع نظری ادامه یافت. مشارکت کنندگان 26 نفر و شامل: 14 مراقب، 3 کودک مبتلا به فلج مغزی، 5 نفر کاردرمانگر، 1 نفر فیزیوتراپیست و 3 نفر مدیر توانبخشی بودند. منبع اصلی جمع آوری داده­ها، مصاحبه­های عمیق و نیمه ساختارمند بود. داده­ها بر اساس رویکرد کوربین و اشتروس (2008) مورد تجزیه و تحلیل قرار گرفت.
یافته­ها
موانع ساختاری هندلینگ مادری در پنج طبقه اصلی شامل: عوامل مربوط به مراقب، عوامل مربوط به کودک، عوامل مربوط به درمانگر، عوامل مرتبط با جامعه و عوامل دولتی، از داده­ها استخراج شد.
نتیجه گیری
شناخت موانع و چالش­های مراقبتی کودکان فلج مغزی در منزل به درک تجربیات مراقبان، زمانی که مشغول هندلینگ کودک فلج مغزی هستند، کمک می کند و می­تواند به توانمندی آن­ها در جهت رسیدن به مدیریت صحیح و اثر بخش هندلینگ کمک کند. نتایج پژوهش پیش رو می­تواند دید وسیعی به درمانگران، مدیران و سیاست­گذاران توانبخشی برای درک نیازها، رفع چالش­ها و دغدغه­های مراقبان و کودکان فلج مغزی جهت برنامه­­ریزی جامع در خصوص هندلینگ مادری کودک فلج مغزی در منزل، بدهد.

کلیدواژه‌ها

موضوعات


عنوان مقاله [English]

Structural barriers of mothering handling in the children with cerebral palsy at home

نویسندگان [English]

  • Hamid Dalvand 1
  • Leila Dehghan 1
  • Mehdi Rassafiani 2
  • Seyed Ali Hosseini 2
  • Sayyed Ali Samadi 3
  • Hamid Reza khankeh 4
1 Assistant Professor, Department of Occupational Therapy, School of Rehabilitation, Arak University of Medical Sciences, Arak, Iran.
2 Associated Professor, Department of Occupational Therapy, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
3 Honorary fellow in School of Nursing, Faculty of Life and Health Science, University of Ulster, Jurdanstown, Northern Ireland.
4 Associated Professor, Department of Nursing, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran.
چکیده [English]

Back ground and Aim: Mothering handling plays an important role in the daily life of children with Cerebral Palsy (CP) and their mothers. Moreover, the greatest amount of handling of children with CP is done by the mothers and at home. Therefore, the present study was conducted to explore the structural barriers of mothering handling in the children with CP at home.
Materials and Methods: The current qualitative study was conducted following grounded theory methodology. The purposeful sampling followed by theoretical sampling. Selection of participants continued to achieve theoretical saturation. Data was gathered from 26 individual interviews with 14 caregivers of children with CP, 3 children with CP, 5 occupational therapists, 1 physiotherapist, and 3 rehabilitation managers in Tehran. The main source of data collection was in-depth, semi-structured interviews. Data was analyzed based on Corbin and Straus method (2008).
Results: Five categories/themes emerged from the data, including factors related to caregivers, child, therapist, community, and governmental organizations.
Conclusion: Understanding the barriers of caring for a child with CP and experiences of mothers when engaged in handling with their child can also help them to be empowered to achieve the proper management and effective handling. The results of the present research could provide broader perspective to therapists, rehabilitation managers, and policy makers for understanding the needs and meeting the challenges and concerns of caregivers and children with CP for a comprehensive plan for handling of children with CP.

کلیدواژه‌ها [English]

  • Caregivers
  • Child
  • Cerebral palsy
  • Mothering handling
  • Grounded theory
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