بررسی ارتباط بین موانع محیطی با کیفیت زندگی کودکان فلج مغزی 12-8 سال مدرسه رو شهر تهران

نوع مقاله: مقاله پژوهشی

نویسندگان

1 گروه آموزشی کاردرمانی، دانشکده توانبخشی، دانشگاه علوم پزشکی تهران، تهران، ایران

2 استادیار گروه آموزشی کاردرمانی، دانشکده توانبخشی، دانشگاه علوم پزشکی تهران، تهران، ایران

3 کارشناسی ارشد کاردرمانی، دانشکده توانبخشی، دانشگاه علوم پزشکی تهران، تهران، ایران

4 استادیار گروه آموزشی آمار زیستی، دانشکده پیراپزشکی، دانشگاه علوم پزشکی شهید بهشتی، تهران، ایران

چکیده

مقدمه و اهداف
به حداکثر رساندن کیفیت زندگی کودکان و نوجوانان دارای ناتوانی، هدف اولیه خدمات توانبخشی و از جمله بحث­های مطرح در تحقیقات توانبخشی و سلامت کودک می­باشد. با آگاهی از میزان تاثیر عوامل مختلف از جمله موانع محیطی می­توان در جهت بهبود کیفیت زندگی این کودکان اقدام کرد. هدف از مطالعه حاضر، بررسی ارتباط بین موانع محیطی با کیفیت زندگی کودکان فلج مغزی 12-8 سال مدرسه­رو شهر تهران بود.
مواد و روش­ ها
مطالعه حاضر از نوع مقطعی و توصیفی-تحلیلی بود. جمعیت مورد مطالعه شامل 67 نفر بود که از بین کودکان مبتلا به فلج مغزی 12-8 سال مدرسه­رو سطح شهر تهران که معیار­های ورود به مطالعه را داشتند، به صورت نمونه­گیری در دسترس انتخاب شدند. جهت ارزیابی موانع محیطی از European Child Environment Questionnaire و جهت ارزیابی کیفیت زندگی از پرسش­نامه کیفیت زندگی از Cerebral Palsy Quality Of Life Questionnaire نسخه والدین استفاده گردید.
یافته­ ها
یافته­های مطالعه حاضر نشان داد که بین کیفیت زندگی و موانع محیطی رابطه منفی معنادار وجود دارد (05/0
نتیجه ­گیری
نتایج مطالعه حاضر نشان داد بین کیفیت زندگی و موانع محیطی رابطه معنادار وجود دارد؛ به این صورت که هر اندازه موانع محیطی پیرامون یک کودک فلج مغزی کمتر باشد، از کیفیت زندگی مطلوب­تری برخوردار خواهد بود و برعکس.

کلیدواژه‌ها

موضوعات


عنوان مقاله [English]

Relationship between Environmental Barriers and Quality of Life of School-Aged Children, Aged 8-12, with Cerebral Palsy in Tehran

نویسندگان [English]

  • Amin Rezaei 1
  • Parvin Raji 2
  • Seyedeh Tahmineh Mousavi 2
  • Mahmoud Mahmoodian 3
  • Ahmad reza Baghestani 4
1 MSc Student in Occupational Therapy, School of Rehabilitation, Tehran University of Medical Sciences, Tehran, Iran
2 PhD, Assistant Professor in Occupational Therapy, School of Rehabilitation, Tehran University of Medical Sciences, Tehran, Iran
3 MSc in Occupational Therapy, School of Rehabilitation, Tehran University of Medical Sciences, Tehran, Iran
4 PhD, Assistant Professor in Biostatistics, Department of Biostatistics, Faculty of Paramedical Sciences, Shahid Beheshti University of Medical Science Tehran, Iran
چکیده [English]

Background and Aim: Improving the quality of life in children and adolescents with disabilities is the primary goal of children's rehabilitation services and researchers. Reducing and identifying environmental barriers for children with disabilities are essential to create an inclusive society. The purpose of the present study was to determine the relationship between environmental barriers and quality of life of children with cerebral palsy.
Materials and Methods: In the current descriptive/analytical cross-sectional study, 67 children with cerebral palsy were selected via the convenience sampling. Data were collected using demographic questionnaire, European Child Environment Questionnaire (ECEQ), and CP-QOL questionnaire (Primary Caregiver). The data were analyzed using SPSS software running Pearson correlation.
Results: The findings showed that there is a significant negative relationship between quality of life and environmental barriers (r = -0.36, p <0.05). Also, a significant negative correlation was found between the quality of life of children with cerebral palsy and physical environment of home, the physical environment of the community, transportation, and social support (p <0.05). However, there was no relationship between the quality of life and the components of the physical environment of the school, social support at home, attitude of family and friends, attitude of teachers and therapists, and attitude of classmates (p <0.05).
Conclusion: The results of the present study showed that there is a significant relationship between quality of life and environmental barriers so that as environmental barriers around children with cerebral palsy decrease, the quality of life increases and vice versa.

کلیدواژه‌ها [English]

  • Environmental barriers
  • Quality of life
  • Cerebral palsy
  1. McDougall J, Wright V, DeWit D, Miller L. ICF-based functional components and contextual factors as correlates of perceived quality of life for youth with chronic conditions. Disability and rehabilitation. 2014;36(25):2143-51.##
  2. Rosenbaum PL, Walter SD, Hanna SE, Palisano RJ, Russell DJ, Raina P, et al. Prognosis for gross motor function in cerebral palsy: creation of motor development curves. Jama. 2002;288(11):1357-63. .##
  3. Law M, Petrenchik T, King G, Hurley P. Perceived environmental barriers to recreational, community, and school participation for children and youth with physical disabilities. Archives of physical medicine and rehabilitation. 2007;88(12):1636-42. .##
  4. Pashmdarfard M, Amini M. The Relationship Between the Parent Report of Gross MotorFunction of Children With Cerebral Palsy and Their Participation in Activities of Daily Livings. Journal of Modern Rehabilitation. 2017;11(2):93-102. .##
  5. Pashmdarfard M, Amini M. Does Parent Report Gross Motor Function Level of Cerebral Palsy Children Impact on the Quality of Life in these Children? Iranian journal of child neurology. 2017;11(4):52. .##
  6. Colver A. Study protocol: SPARCLE–a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy. BMC Public Health. 2006;6(1):150. .##
  7. Michelsen SI, Flachs EM, Uldall P, Eriksen EL, McManus V, Parkes J, et al. Frequency of participation of 8–12-year-old children with cerebral palsy: A multi-centre cross-sectional European study. EuropeanJournal of Paediatric Neurology. 2009;13(2):165-77. .##
  8. Ephraim PL, MacKenzie EJ, Wegener ST, Dillingham TR, Pezzin LE. Environmental barriers experienced by amputees: the Craig Hospital inventory of environmental factors–short form. Archives of physical medicine and rehabilitation. 2006;87(3):328-33. .##
  9. Harrison MB, Juniper EF, Mitchell-DiCenso A. Quality of life as an outcome measure in nursing research. Canadian Journal of Nursing Research Archive. 1996;28(3) .##
10. Guite H, Clark C, Ackrill G. The impactof the physical and urban environment on mental well-being. Public health. 2006;120(12):1117-26. .##

11. Scaffa ME, Reitz SM, Pizzi M. Occupational therapy in the promotion of health and wellness: FA Davis Company Philadelphia, PA; 2010. .##

12. Oskoui M, Coutinho F, Dykeman J, Jetté N, Pringsheim T. An update on the prevalence of cerebral palsy: a systematic review and meta‐analysis. Developmental Medicine & Child Neurology. 2013;55(6):509-19. .##

13. Sajedi F SF, Ahmadi M. Cerebral Palsy in Children Journal Of Health and Care [ In Persian ]. 2014;15(4):88-97. .##

14. Piazza B, Hennrikus W, Schell R, Armstrong D, Fortuna K. The Factors Most Important for Quality of Life in Children and Adolescents with Cerebral Palsy. Journal of Pediatric Neurology and Medicine. 2016;2016. .##

15. Badia M, Orgaz MB, Gómez-Vela M, Verdugo MA, Ullán AM, Longo E. Do environmental barriers affect the parent-reported quality of life of children and adolescents with cerebral palsy? Research in developmental disabilities. 2016;49:312-21. .##

16. Colver A, Thyen U, Arnaud C, Beckung E, Fauconnier J, Marcelli M, et al. Association between participation in life situations of children with cerebral palsy and their physical, social, and attitudinal environment: a cross-sectional multicenter European study. Archives of physical medicine and rehabilitation. 2012;93(12):2154-64. .##

17. Dehghan L, Abdolvahab M, Bagheri H, Dalvand H. Inter rater reliability of Persian version of Gross Motor Function Classification System Expanded and Revised in patients with cerebral palsy. Daneshvar. 2011;18(91):37-44. .##

18. Colver A. Study protocol: SPARCLE–a multi-centre European study of the relationship of environment to participation and quality of life in children with cerebral palsy. BMC Public Health. 2006;6(1):105. .##

19. AkbarFahimi N, Rassafiani M, Soleymani F, Vameghi R, Kazem-Nejad A, Nobakht Z. Validity and reliability of Farsi version of cerebral palsy-quality of life questionnaire. Journal of Rehabilitation. 2013;13:73-83. .##

20. Dickinson HO, Colver A. Quantifying the physical, social and attitudinal environment of children with cerebral palsy. Disability and Rehabilitation. 2011;33(1):36-50. .##

21. Livingston MH, Rosenbaum PL, Russell DJ, Palisano RJ. Quality of life among adolescents with cerebral palsy: what does the literature tell us? Developmental Medicine & Child Neurology. 2007;49(3):225-31.v

22. Houlihan CM, O'Donnell M, Conaway M, Stevenson RD. Bodily pain and health-related quality of life in children with cerebral palsy. Developmental Medicine & Child Neurology. 2004;46(05):305-10. .##

23. Vargus-Adams J. Health-related quality of life in childhood cerebral palsy. Archives of physical medicine and rehabilitation. 2005;86(5):940-5. .##

24. Shelly A, Davis E, Waters E, Mackinnon A, Reddihough D, Boyd R, et al. The relationship between quality of life and functioning for children with cerebral palsy. Developmental Medicine & Child Neurology. 2008;50(3):199-203.v

25. Gharaborghe SN, Sarhady M, Hosseini SMS, Mortazavi SS. Quality of Life and Gross Motor Function in Children with Cerebral Palsy (aged 4-12). Iranian Rehabilitation Journal. 2015;13(3). .##

26. Russo RN, Goodwin EJ, Miller MD, Haan EA, Connell TM, Crotty M. Self-esteem, self-concept, and quality of life in children with hemiplegic cerebral palsy. The Journal of pediatrics. 2008;153(4):473-7. e2. .##

27. Tessier D, Hefner J, Newmeyer A. Factors related to psychosocial quality of life for children with cerebral palsy. International journal of pediatrics. 2014;2014. .##

28. Salehi Dehno N, Noorizadeh Dehkordi S, Dadgoo M, Salehi M, , et al. Relationship between quality of life with ambulation status and lower limb range of motion in young adults with spastic cerebral palsy. Journal of Research in Rehabilitation Sciences. 2012:807-17. .##

29. Noori M, Pishyareh E, Hosseini SA, Akbarfahimi N, Rahgozar M. Relationship between upper extremity function and quality of life in the children with spastic cerebral palsy in Tehran 2013. Pajouhan Scientific Journal. 2015;13(3):40-8. .##

30. Nobakht Z, Rassafiani M, Rezasoltani P, Sahaf R, Yazdani F. Environmental barriers to social participation of children with cerebral palsy in Tehran. Iranian Rehabilitation Journal. 2013;11:40-5. .##

31. Forsyth R, Colver A, Alvanides S, Woolley M, Lowe M. Participation of young severely disabled children is influenced by their intrinsic impairments and environment. Developmental Medicine & Child Neurology. 2007;49(5):345-9. .##