Causes and Consequences of Burnout in Caregivers: A Qualitative Content Analysis

Document Type : Original article

Authors

1 PhD Student of Occupational Therapy, Department of Occupational Therapy, University of Social Welfare & Rehabilitation Sciences, Tehran, Iran

2 Associate Professor, Department of Occupational Therapy, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran

3 Associate Professor, Department of Occupational Therapy, University of Social Welfare & Rehabilitation Sciences, Tehran, Iran

4 Assistant professor, Department of Occupational therapy, School of Rehabilitation, Arak University of Medical Sciences, sardasht St,Basij square, Arak,Iran

Abstract

Background and Aim: Caring for children with Cerebral Palsy (CP) is hard, energy-consuming, and long-term, and can lead to caregivers’ burnout. The present study aimed to identify reasons for and consequences of occupational burnout among caregivers working in institutes for children with CP in an Iranian context.
Materials and Methods: The present study was carried out using qualitative approach and content analysis methodology. Nine caregivers, two managers, and one physiotherapist participated in the study. Purposive sampling method was used to select participants and in depth, semi-structure interviews were used to collect the data. All interviews were conducted in institutes. The interviews were recorded, transcribed verbatim, and overviewed. Constant comparative analyses were used to analyze the interviews.
Results: A total of 623 initial codes were extracted from the interviews. Then, the codes were categorized into three main categories and nine sub-categories. The main categories were as follows: care-related stress, nature of caring occupation, and managerial and organizational challenges and shortcomings.
Conclusion: Identifying the barriers and challenges can lead to betterment of managers’ knowledge and, consequently, adoption of more proper organizational policies to increase the quality of caring services in the institutes.

Keywords

Main Subjects


  1. Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth N, Dan B, et al. Proposed definition and classification of cerebral palsy, April 2005. Dev Med Child Neurol 2005; 47(08):571-6.##
  2. Burkhard A. A different life: caring for an adolescent or young adult with severe cerebral palsy. J Pediatr Nurs. 2013;28(4):357-63. ##
  3. Brehaut JC, Kohen DE, Raina P, Walter SD, Russell DJ, Swinton M, et al. The health of primary caregivers of children with cerebral palsy: how does it compare with that of other Canadian caregivers? Pediatrics. 2004;114(2):e182-e91. ##
  4. Breslau N, Staruch KS, Mortimer EA. Psychological distress in mothers of disabled children. Arch Dis Child. 1982;136(8):682-6. ##
  5. Zanon MA, Batista NA. Quality of life and level of anxiety and depression in caregivers of children with cerebral palsy. Rev Paul Pediatr. 2012;30(3):392-6. ##
  6. Billeter‐Koponen S, Fredén L. Long‐term stress, burnout and patient–nurse relations: qualitative interview study about nurses’ experiences. Scand J Caring Sci. 2005;19(1):20-7. ##
  7. Merlani P, Verdon M, Businger A, Domenighetti G, Pargger H, Ricou B. Burnout in ICU caregivers: a multicenter study of factors associated to centers. Am J Respir Crit Care Med. 2011;184(10):1140-6. ##
  8. Takai M, Takahashi M, Iwamitsu Y, Ando N, Okazaki S, Nakajima K, et al. The experience of burnout among home caregivers of patients with dementia: Relations to depression and quality of life. Arch Gerontol Geriatr. 2009;49(1):e1-e5. ##
  9. Rogers JC, Dodson SC. Burnout in occupational therapists. Am J Occup Ther. 1988;42(12):787-92. ##
  10. Hellesøy O, Grønhaug K, Kvitastein O. Burnout: conceptual issues and empirical findings from a new research setting. Scandinavian journal of management. 2000;16(3):233-47. ##
  11. Ravari A, Sayadi A, Khodadadi H, Jafarinaveh H. Occupational burnout assessment among nurses working in Iranian hospital of Ali-ebn Abitaleb, Rafsanjan-Iran. Health (Irvine Calif). 2012;1(2):103-10. ##
  12. Lin L-P, Lin J-D. Job burnout amongst the institutional caregivers working with individuals with intellectual and developmental disabilities: Utilization of the Chinese version of the Copenhagen Burnout Inventory survey. Res Autism Spectr Disord. 2013;7(6):777-84. ##
  13. Poncet MC, Toullic P, Papazian L, Kentish-Barnes N, Timsit J-F, Pochard F, et al. Burnout syndrome in critical care nursing staff. Am J Respir Crit Care Med. 2007;175(7):698-704. ##
  14. Decker JT, Bailey TL, Westergaard N. Burnout among childcare workers. Resid Treat Child Youth. 2002;19(4):61-77. ##
  15. Maslach C, Jackson S. The cost of caring. Englewood Cliffs, NJ, PrenticeHall. 1982. ##
  16. van den Heuvel ET, de Witte LP, Schure LM, Sanderman R, Meyboom-de Jong B. Risk factors for burn-out in caregivers of stroke patients, and possibilities for intervention. Clinical Rehabilitation. 2001;15(6):669-677##
  17. Graneheim UH, Lundman B. Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ Today. 2004;24(2):105-12. ##
  18. Schwandt TA, Lincoln YS, Guba EG. Judging interpretations: But is it rigorous? Trustworthiness and authenticity in naturalistic evaluation. New directions for evaluation. 2007;2007(114):11-25. ##
  19. Horng Y-S, Hsieh S-F, Wu H-C, Feng C-T, Lin M-C. Work-related musculoskeletal disorders of the workers in a Child Care Institution. Tw J Phys Med Rehabil. 2008;36(1):15-21. ##
  20. Bakker AB, Demerouti E, Verbeke W. Using the job demands‐resources model to predict burnout and performance. Hum Resour Manage. 2004;43(1):83-104. ##
  21. Groark CJ, McCall RB, McCarthy SK, Eichner JC, Warner HA, Salaway J, et al. The Effects of a Social–Emotional Intervention on Caregivers and Children With Disabilities in Two Central American Institutions. Infants Young Child. 2013;26(4):286-305. ##
  22. Sanders MJ, Morse T. The ergonomics of caring for children: an exploratory study. Am J Occup Ther. 2005;59(3):285-95. ##
  23. Roley SS, Barrows CJ, Susan Brownrigg OTR L, Sava DI, Vibeke Talley OTR L, Kristi Voelkerding B, et al. Occupational therapy practice framework: Domain & process 2nd edition. Am J Occup Ther. 2008;62(6):625. ##
  24. Andersen EA. Working in long-term residential care: a qualitative metasummary encompassing roles, working environments, work satisfaction, and factors affecting recruitment and retention of nurse aides. Glob J Health Sci. 2009;1(2):2. ##
  25. Harrington C, Collier E, Schnelle JF. Nursing indicators of quality in nursing homes. J Gerontol Nurs. 2003;29(10):5-9. ##
  26. Stevens L, Rees S, Lamb KV, Dalsing D. Creating a culture of safety for safe patient handling. Orthop Nurs. 2013;32(3):155-64. ##
  27. Cocco E, Gatti M, de Mendonça Lima CA, Camus V. A comparative study of stress and burnout among staff caregivers in nursing homes and acute geriatric wards. Int J Geriatr Psychiatry. 2003;18(1):78-85. ##
  28. Thelin A, Holmberg S, Thelin N. Functioning in neck and low back pain from a 12-year perspective: a prospective population-based study. J Rehabil Med. 2008;40(7):555-61. ##
Volume 6, Issue 4
January and February 2018
Pages 132-141
  • Receive Date: 31 October 2016
  • Revise Date: 06 December 2016
  • Accept Date: 08 January 2017
  • First Publish Date: 22 December 2017