Quality of Life and Musculoskeletal Pain of Caregivers of Children with Cerebral Palsy at Physical Disability Schools

Document Type : Original article

Authors

1 MSc of Occupational Therapy, Department of Occupational Therapy, Faculty of Rehabilitation, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran

2 Assistant Professor, Department of Occupational Therapy, Faculty of Rehabilitation, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran

3 Assistant Professor, Department of Occupational Therapy, School of Rehabilitation, Arak University, Arak, Iran.

4 Assistant Professor, Social Welfare Management Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran

5 Associate Professor, Occupational Therapy Department, Faculty of Allied Health Sciences, Kuwait University, Kuwait Pediatric Neurorehabilitation Research Center, University of Social Welfare and Rehabilitation Sciences, Tehran, Iran

Abstract

Background and Aims: Children with Cerebral palsy need for caring at school because of their inability to perform daily occupations. The caregivers at physical disability schools provide care support for these children at school time. The caring is accompanied by physical and psychological tension and may affect the caregivers’ health and therefore quality of life. The aim of the present study was to evaluate the musculoskeletal pain and quality of life of caregivers of children with Cerebral Palsy at physical disability schools.
Materials and Methods:In the present cross-sectional study, caregivers of children with cerebral palsy in Tehran, Isfahan, and Karaj who were willing to participate in the study and met the inclusion criteria were recruited. Finally, 92 participants took part in the study. The evaluations were done using the Persian version of the 36-item Short Form Health Survey (SF-36) questionnaire, Nordic Musculoskeletal Questionnaire (NMQ), and Visual Analog Scale. The statistical analyses of data were done using exploratory factor analysis and Pearson correlation coefficient tests.
Results: The results indicated that the mean score for the study sample on physical component summary (PCS) and mental component summary (MCS) were 58.81 and 59.01, respectively. The greatest amount of pain and functional limitations were found in the lower back and knees, and the highest intensity of pain were found in the shoulders, neck, as well as upper and lower back. There were also a significant correlation between musculoskeletal pain and quality of life (r=0/523, P=0.001). Furthermore, there were significant correlations between work experience, insurance, working hours, income as well as Multiple job and physical pain (P<0/05).
Conclusion: Permanent caring for many children with cerebral palsy and doing the heavy and repetitive caring tasks not only reduce the quality of life but also cause physical pain in the caregivers of children with cerebral palsy at physical disability schools. It is suggested that more support and pre-employment trainings about the principles of caring be provided to prevent physical pain in caregivers.

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Main Subjects

References

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The Scientific Journal of Rehabilitation Medicine
Volume 7, Issue 3
September and October 2018
Pages 96-104

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History

  • Receive Date: 05 May 2017
  • Revise Date: 05 August 2017
  • Accept Date: 07 November 2017
  • First Publish Date: 23 September 2018

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